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From Dimitra Ibrahim:
I'm 23y/o from Australia who has very recently had my spleen removed
(I was told it was 8-9 times larger than a normal spleen). My blood
transfusion requirement is expected to stretch from 3 units every
3 weeks, to every 4 weeks. I did have some trouble using my Desferal
regularly mainly because of the sore pump sites and the awkwardness
of the butterfly needles. I was recently told about the Thalaset which
is a 90 degree needle and have begun using 3g of Desferal at least
5-6 nights per week. This needle is far more comfortable than the
butterfly needle. Instead of inserting the needle and having to bend
it down to tape it, this needle goes straight in and has an adhesive
base which sticks to your skin. To anyone having trouble with using
butterfly needles I strongly recommend you try these Thalasets, you
will not want to go back to butterfly needles. I feel I have much
more freedom to wear the pump at night or even during the day! It
sits flat against your skin (unlike the butterfly which sticks up
slightly from being bent) so you can hide it easily and it does not
get caught on clothing. I also find it leaves less swelling than after
use of a butterfly needle. At this site I have read about of many
different variations on using Desferal, a lot of which I have not
heard before, but I have not heard anyone mention the use of the Thalaset.
If anyone has used it or has any questions for me, I would be interested
in hearing from you, so please feel free to email me. dimitra@mbox.com.au |
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